Epidermolysis bullosa tau pom thawj zaug hauv lig 1800s. Nws yog ib tug tswv cuab ntawm tsev neeg ntawm cov kab mob hu ua blistering kab mob. EB tshwm sim hauv peb hom: simplex, junctional thiab dystrophic.
Tus kab mob ntawm daim tawv nqaij Garrett Spaulding raug mob dab tsi?
Spaulding, ib tug tub hluas hnub nyoog 17 xyoo los ntawm Gustine, yug los nrog recessive dystrophic epidermolysis bullosa, los yog EB, ib qho kab mob tsawg uas ua rau pob khaus thiab kua muag ntawm daim tawv nqaij, tsim tej qhov txhab mob. EB npog txog 80 feem pua ntawm Spaulding lub cev, thiab vim muaj teeb meem thiab cov hlab ntsha puas, nws tsis tuaj yeem taug kev.
Tus me nyuam npauj npaim muaj kab mob dab tsi?
Epidermolysis bullosa yog ib yam kab mob uas tsis tshua muaj caj ces uas ua rau tawv nqaij tawv heev uas nws tuaj yeem tsim kua muag lossis hlwv ntawm qhov kov me ntsis. Cov menyuam yaus uas yug nrog nws feem ntau hu ua "Cov Me Nyuam Npauj Npaim" vim tias lawv cov tawv nqaij zoo li tsis yooj yim li tus npauj npaim tis. Cov ntaub ntawv me me yuav zoo dua nrog lub sijhawm.
Koj tuaj yeem nyob ntev npaum li cas nrog tus kabmob epidermolysis bullosa?
Nyob rau hauv cov ntaub ntawv hnyav dua ntawm EB, lub neej expectancy ranges txij thaum ntxov mus txog 30 xyoo xwb. Nyem rau hauv qab no kom paub ntau ntxiv txog txhua hom thiab ntsib tus neeg nyob nrog nws.
Puas yog epidermolysis bullosa tsawg?
Vim li ntawd, cov kab mob hnyav tuaj yeem ua rau tuag taus. Epidermolysis bullosa (ep-ih-dur-MOL-uh-sis buhl-LOE-sah) is a pab pawg ntawm cov kab mob tsis tshua muajuas ua rau tawv nqaij tawv, hlwv.
